Today we hear an incredible story from a woman who never stops living! At 35 years old, 25 years longer than doctors predicted she would live, Ashley Kurpiel makes every single day count, motivating others and shining her light. Diagnosed with Fibrodysplasia Ossificans Progressiva, the Stone Man Syndrome, at the age of 3, Ashley has made it her mission in life to inspire others in any way she can.
Whether she’s being a spokesperson for IFOPA, International Fibrodysplasia Ossificans Progressiva Association; volunteering at Never Say Never, a pirate camp for children with disabilities; being a Motivational Coach for NubAbility Athletics Foundation, a sports camp for kids with limb-differences in main-streamed organized sports; or owning the title Super Star Director of Motivation and Athlete Management for A.S.K., Adaptive Skate Kollective and raising awareness for the adaptive community with skateboarding training, coaching, competitions and special events; Ashley is positively impacting the lives of so many people around the world!
Listen in as Ashley, an ‘Angel on Assignment,’ shares her inspiring story with us of making life count each and every day, despite living with FOP!